In my last post I told you that Homebase had donated us a Cchristmas tree. Well today, after an hour and a half of arguing over tinsel, moving people’s baubles to a better place and most importantly lots of laughter the Christmas tree is up!
Two of the social workers, some parents, a friend of a patient plus Ed and I battled with the branches for a while before we managed to get them into the correct holes, then we put it by the window and started decorating! Ed and I were wearing some ridiculous rudolf antlers with baubles hanging off which added to the fun!
Finally the time came to put the star on, so Ed and I being the first and longest running patients got to do the honours, which turned out to be a bit of a nightmare…
If you click to enlarge the photo it will turn into a gallery of them!
In the end (after chopping at the tree a bit) all was fine and we have a festive sight to look at now!
This has been one of my favourite days of being in hospital as it was lovely chatting to so many people who I have grown close with through these last few months and we were focusing on the positives, not the possibility of being in hospital over Christmas.
Hello again 🙂
I have two pieces of interesting/good news today!
First of all on the 17th the ward is being officially opened by two celebrities and the mayor of Southampton is popping in that afternoon! (I happen to know who the celebrities are but am sworn to silence as the press are not allowed to know until the day before!) But more importantly for me, on that day some people from BBC and ITV are going to do an interview with me and Ed where we are basically bigging up the ward (which I have no problem with) and answering questions on our time in hospital. I will ask when it will be shown on TV and let you know if they can give me an answer! I am slightly worried about being filmed and messing it all up but Kate (my social worker) says as it’s not live they can cut and film bits again if it goes wrong! How about that eh, me on TV!
Second of all the consultant has said I can have more home leave this weekend- YAY!! We are going to go somewhere hopefully in the open air (avoiding people) and pick a Christmas tree and then take it home to decorate, which is bound to end in arguing and bad moods but hey ho, wouldn’t be normal without that! I have adjusted to being in here all the time now, but the thought of going home does feel good!
Homebase have donated a Christmas tree to the ward so tomorrow the social workers have arranged for us all to come out of our rooms to assemble and decorate it with Christmas tunes blaring from the jukebox which will be good!
Well I am getting withdrawal symptoms from this lovely book I am reading so I had better go,
will post a pic of the finished Christmas tree tomorrow!
After my grandparents came for soup and french bread at lunchtime today we went for a lovely walk with my other grandma at Slindon woods. There were lots of autumnal colours and crunching leaves which was lovely to be out in!
We also went to a tiny cafe called The Forge because it is usually very quiet, but there was too many people so I had to sit outside with mum and Daniel. We ran into my cousin Holly and my granddad as well who had been out taking their dog for a walk so it was lovely to see them too!
By the time we got back it was dark so we drove up into the streets of town to see the Christmas lights! It was annoying not to be able to get out and walk around properly but I’m really glad I got to see them at least!
Tonight mum is making my favourite meal of fajihtas, hurray for not hospital food!
Tonight I wanted to share two amazing things that have happened to me since I was diagnosed.
The first happened a few months back and I wanted to blog about this before but wasn’t sure I should, but since this second event has happened I felt I had to express myself!
So the first occurrence was that someone anonymously put some money in an envelope through our door. When my aunty told me I was in shock! This sort of thing happens in movies, not real life! It meant that my parents were able to buy me a really awesome laptop and I could not be more grateful as it is my lifeline! With it I was able to start my blog, I can skype people, stay in contact using social media sites and most recently take charge of this years Christmas shopping! I really admire whoever it was for not revealing their identity as it takes a certain type of person/ people to just leave it with no note or any clue- I don’t think I could! So even though I can’t thank you in person if you are reading this I want you to know that your act of kindness has brightened my days here and inspired me to give selflessly in the future.
The second has just happened and has left me in shock again. My granddad has been visiting a church near where he lives & naturally he had asked them to pray for me so they knew our situation. At one of the meetings someone handed him an envelope and said that they wanted to give this to help with fuel costs for my parents. It could not come at a better time as everything is going wrong- the washing machine has issues, the roof in my room was leaking and dad has just shelled out on new windows as ours are terrible: in winter I can see my blinds moving in the draft! The amount of money was staggering coming from strangers! Apparently one of the girls there reads my blog so if you know this is you then please tell everyone how thankful I am! What I have learnt through this is that God really does provide. Not just through money but through the ward I have been given, through the nurses who have helped and reassured me, through the lovely people I have had the chance to get closer to, through the meals given that have supported my family and much more. I just wish that I’d learnt this earlier and it didn’t take something as huge as this for me to appreciate how God fills all my needs in life!
He really is wonderful and I hope I have shown and can continue to show some of you this through my experiences!
I hope you have had a good weekend! I definitely have- I’ve seen some great people and been given EVEN MORE lovely presents! At this rate I will have nothing to ask for at Christmas because people have been so generous!
Speaking of gifts, earlier this week Ed presented me with these (which he no longer needs as he is not on a neutropenic diet) …
He got them as his mum works for a school and they order them for the canteen there anyway, I think us “neutros” are not supposed to use ketchup bottles because it lets bacteria get in and possibly bacteria grow on it when the top gets all manky!
Like Ed, I have become one of those patients whose levels are consistently low- so much so that it interrupts treatment such as LPs. After dropping to 11 I had a transfusion which took the level up to 30, however I then dipped back down to 13. These are not at all good levels for the LP (they want my platelets at 80) so I am having two bags of platelets today and one is on reserve in case they drop again in the next 24 hours.
My next LP is scheduled for 11.30am tomorrow. I will let you know whether everything goes to plan or not!
Earlier I had a lovely chat with Yvonne, the specialist nurse for the TYA unit and C6 the adult unit (and accidentally ended up spilling my life to the poor woman!) First she got me very scared- asking about Daniel having a blood test to see if he is a match for me if I ever need a bone marrow transplant (BTW DAD/DAN IF YOU SEE THIS DON’T FREAK OUT, ITS NOT LIKELY TO HAPPEN AND I WOULDN’T FORCE YOU IF IT DID COME ABOUT!) and then she got me very excited by saying that her and another nurse are going to ring chichester paediatrics to see what parts of my next block “Escalating Capizzi” can be done at St Richards, so that I could be LIVING AT HOME! Somehow I think the doctors are going to be reluctant to allow it but that would be reaaallly good if they did! I do find the idea daunting though- I’m so used to being here and I can’t imagine what it will be like being home again for an extended period of time but on chemo too. It’ll be another big life change to adjust to, but I’m sure it will work out fine!
Anyway, I am now eating Heroes and mulling over whether to watch I’m A Celebrity or Fear of Flying: Caught On Camera at 9! Before i go, here’s this weeks nails…