Tag Archives: bored

Chemo Finally Starts, Plus Some Stir Crazy Ramblings

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I know all these updates and changes of plan that I have been posting recently have seemed a bit absurd and discombobulating but I can finally come to you today with my official treatment plan!
My current doctor (his name is Charles for future reference) told me that he has written up all my drugs for the next month which is very efficient and good of him!
Earlier on I had a lumbar puncture which means that there is currently a drug called Methotrexate happily floating around my spinal fluid and preventing any leukaemia cells from growing in there. Tomorrow I have two doses of IV chemotherapy through my Hickmann line and Friday brings the lousy lower back injections but thankfully after that I will be free until next Thursday!

I’m hoping that in the space where there is nothing happening they will ship me off home again for the weekend or at least grant me some day leave so I can go for a walk in the New Forest or a spot along the docks in Southampton we found once.

My immune system is currently at 7.8 neutrophils which is well within normal range and still so high that I haven’t got used to it so I’m currently feeling optimistic that it won’t drop too fast and I won’t be stuck in my prison cell too much!

Today everyone seems to be feeling a bit tired and listless which makes us good company for each other, when our moods coincide we know how to be friendly but not get on each other’s nerves because we all understand how the other people feel! I think these days are worse for our relatives as they don’t know how to cheer us up or that actually sometimes we just want to be down and lazy and can’t help being snappy at you!

I’m currently writing letters to people to alleviate boredom and feel more creative so if you’d like some correspondence (well really just me rambling on about nothing and doing some truly horrendous sketches) please go to the “ask me” page of my blog and fill in the form with your address as it will be emailed straight to me so no one else will see it and you’ll be giving me something to do! Even if you think I don’t remember you or it would be weird- trust me it won’t! It’s really lovely for me to see that people read the blog and care, some of my most appreciated messages have come from the most unexpected sources so don’t doubt how much even the little things mean!

Hope you are all enjoying the Easter holidays and don’t eat too much chocolate…
who am I kidding there is no such thing as too much chocolate. Stuff your faces!

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Same Old, Same Old

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Still waiting for the missed lumbar puncture, am getting a bit tired of all the miscommunication, waiting around and most of all the peripheral blood tests…┬áleave my poor bruised arms alone please!

We are moving on with the chemo, some nasty drugs which make me feel ill but are all for the greater good so you have to grin and bear it. I’m not due any drips until Thursday so I get a couple of days off at the moment which is nice.

Today I was ashamed to admit to Ed that the highlight of yesterday was watching a DVD whilst lying in bed, (actually it was a game of pool and having a visitor but I had forgotten that at the time) so I have tried to do some different things today… i.e. blogging and watching youtube videos. Oh life is filled with excitement!
Have decided to use this down time wisely and acquire new tricks and talents such as learning all of the states of America by heart and being able to recite them. Will update you on how this is going and maybe upload a video when I can chant them fast enough for it to be impressive (this probably sounds ridiculous to you but I think its quite exciting. See, your perspective on everything changes when something like this happens to you!)

That’s all to tell apart from this weeks nails, they are pink butterfly wings and are so pretty!